MDA Launches New Research Symposium Series

MDA will sponsor four symposia addressing specific roadblocks and moving forward with therapy development for neuromuscular disease

Article Highlights:
  • The new symposia are designed to allow MDA to be nimble in addressing specific research issues.
  • In 2012, small groups of leading experts will convene to discuss gene therapy in neuromuscular disease; the role of glial cells in amyotrophic lateral sclerosis; enhancing collaboration between scientists in academia and industry; and exploring newborn screening for Duchenne MD.
by Margaret Wahl on May 17, 2012 - 6:15pm

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This month, MDA is launching a new U.S.-based symposium series to address important topics and ultimately to accelerate therapy development for neuromuscular diseases.

"MDA’s new symposium series is designed to address cutting-edge issues in neuromuscular disease research," said Sanjay Bidichandani, MDA's vice president of research. "Science is advancing at a rapid pace, and these small and focused meetings will allow us to be nimble in tackling multiple issues every year."

Addressing roadblocks, moving forward

In 2012, the world's leading experts will meet to discuss and evaluate four specific issues with the goal of addressing roadblocks in research progress, clinical management and the effective development of therapies for neuromuscular disease.

Conclusions will be published in appropriate scientific journals, and policy recommendations will be made when applicable.

Four symposia in 2012

MDA-AFM Gene Therapy Symposium (May 17, 2012, Philadelphia): Held in conjunction with the 2012 meeting of the American Society of Gene & Cell Therapy, this examination of gene therapy for neuromuscular disease is jointly sponsored by MDA and the Association Française Contre les Myopathies (French Association Against Myopathies).

MDA Neuron Symposium (May 21-22, 2012, Tucson, Ariz.): Presentations and discussion will center on the role of glia (support cells in the nervous system) in the degeneration of motor neurons in amyotrophic lateral sclerosis (ALS). 

MDA Translational Research Symposium (June 17, 2012, New Orleans): Held in conjunction with the 2012 New Directions in Biology and Disease of Skeletal Muscle Conference, this symposium will look at ways to enhance collaboration and technology transfer between academia and industry.

MDA Muscle Symposium (Sept. 11-12, 2012, Washington, D.C.): The promise and possibility of using newborn screening in Duchenne muscular dystrophy (DMD) will be the focus of this symposium.

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I am extremely sorry about my

I am extremely sorry about my comment but i wrote this comment because my brother has LGMD 1B and in last 9 years i hardly seen any research funding for this disease. Every year i save $1500 - $1700 and donate to MDA in hope that something will happen but now i am getting frustrated day by day. My brother is my life and i don't want to lose him. Every subtype of MD needs attention and funding which is not seen when you read research grants and news.

The comment submitted by bgr

The comment submitted by bgr on May 21 is not only ignorant, but an insult to all people who have a nueromuscular disease. ALS is an 'older people disease'?!? Really?! I have known people with it who were diagnosed in their 30's- since when is that old? If the MDA were to cut funding for all diseases except those carrying 'Muscular Dystrophy' in the name, they would have half their members exempt. If age is the factor bgr is concerned about, then the MDA would need to cut research funding for several of the '41 rare muscular dystrophies' they want the MDA to soley research. Many of the people who suffer from some types of muscular dyatrophies do not get a diagnosis until they are of an 'older age', and rarely even show symptoms until then. As individuals with disabilities we are already excluded in many aspects of the world by society, when we start doing so amongst ourselves based on diagnosis we only perpetuate the problem. If anywhere a person with a disability should NOT feel excluded or judged, it should be within an organization that offers hope for an end for ALL neuromuscular disease.

MDA needs to stop funding for

MDA needs to stop funding for ALS which is a older people disease and concentrate on all 41 types of rare muscular dystrophy like LGMD 2A, 2C, 1B.
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