Kids’ Respiratory Needs

Pediatrics report focuses on respiratory care for children with neuromuscular diseases

by Quest Staff on June 2, 2009 - 9:00pm

The proceedings of a symposium titled "Pulmonary Management of Pediatric Patients with Neuromuscular Disorders" have been published as a supplement to the May 2009 issue of the journal Pediatrics.

The symposium was held Feb. 20, 2008, at Scottish Rite Hospital in Dallas, and was sponsored by MDA, as well as Respironics and Hill-Rom Services.

Topics, all of which pertain specifically to children with neuromuscular disorders, include

  • pathophysiology (mechanisms) of respiratory impairment
  • pulmonary function testing
  • assessment of sleep-disordered breathing
  • equipment for cough augmentation and ventilation
  • airway clearance in Duchenne muscular dystrophy
  • noninvasive management of respiratory insufficiency
  • a 2009 perspective on the 2004 American Thoracic Society statement "Respiratory Care of the Patient With Duchenne Muscular Dystrophy"
  • the American College of Chest Physicians consensus statement "Respiratory and Related Management of Patients With Duchenne Muscular Dystrophy Undergoing Anesthesia or Sedation" (see “MDA and chest physicians release recommendations for anesthesia care in DMD”)
  • special considerations in the respiratory management of spinal muscular atrophy
  • new methods of physiologic monitoring

Pediatrics is the journal of the American Academy of Pediatrics. Summaries of the supplement are free on the journal's Web site. The complete supplement (which is geared toward physicians, not parents) is free for journal subscribers, and nonsubscribers can purchase access to it for $25 through the Web site.

The MDA publication Breathe Easy: Respiratory Care in Neuromuscular Disorders also addresses this topic for individuals and families.

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