Congenital MD Meeting

An Aug. 15-16 conference for families affected by CMD can be watched online

by Quest Staff on August 13, 2009 - 9:00pm

A conference for families affected by congenital muscular dystrophy (CMD) is taking place Saturday and Sunday, Aug. 15-16, 2009, at Children's Hospital of Philadelphia, under the sponsorship of Cure CMD.

The conference begins at 8:30 a.m. Eastern time and will be available through the Internet.

Attendance is limited to 50 families because of space constraints. However, the conference can be accessed live via Webex by registering on the Cure CMD site.

The agenda includes talks by:

  • Carsten Bonnemann, an assistant professor of neurology and pediatrics at Children's Hospital of Philadelphia and a current MDA research grantee studying CMD;
  • Katherine Mathews, an associate professor in the Departments of Pediatrics and Neurology at the University of Iowa, a member of MDA's Medical Advisory Committee, and director of the MDA clinic at University of Iowa Hospitals & Clinics;
  • John Porter, program director at the National Institute of Neurological Disorders and Stroke and a former professor of neurology at Case Western Reserve University; and
  • Annie Kennedy, MDA's vice president of advocacy.

See the complete agenda.

(For more on CMD, see Connecting the Dots.)

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