An MDA-supported conference for families and professionals interested in scientific, medical and social issues related to Becker muscular dystrophy (BMD) will take place Aug. 1, 2009, at Massachusetts General Hospital in Boston.
The one-day conference is free, but seating is limited and attendees must register by July 24.
The program features:
Brian Tseng, an assistant professor of neurology at Harvard Medical School and co-director of the MDA Clinic at Mass General, who will provide an overview of BMD and later will talk about "nutriceuticals";
Kevin Flanigan, associate professor of neurology at the University of Utah, who will cover correlations between DNA mutations and the disease course in BMD;
Peter Kang, professor of neurology at Harvard Medical School, who will discuss diagnostic issues in BMD;
MDA Board member Chris Rosa, who will speak at the meeting, has Becker MD and has devoted his career to improving opportunities for people with disabilities.
Elizabeth McNally, a professor at the Institute for Cardiovascular Research at the University of Chicago, a longtime MDA research grantee and a member of MDA's Scientific Advisory Committee, who will present information on the heart in muscular dystrophy;
Annie Kennedy, MDA's Vice President of Advocacy, who will talk about MDA's advocacy efforts; and
Chris Rosa, Assistant Dean for Student Affairs at the City University of New York and a member of MDA's Board of Directors and National Task Force on Public Awareness, who will discuss "managing the Becker identity."
Registration is required by July 24. There will be boxed lunches at 12:30 and a reception at 4:30. No child care will be provided.
To register, write to: Wang Building, ACC 708 55 Fruit Street Boston, MA 02114