Tune in Jan. 28 when the show “Live for the Moment,” hosted by Jeff Probst, makes dreams come true for Roger Childs, who has ALS.
On Jan. 28, a CBS special will help raise awareness of ALS (amyotrophic lateral sclerosis or Lou Gehrig’s disease) by describing how a Colorado man is making the most of his life while battling the deadly disease.
Titled “Ordinary People, Extraordinary Challenges,” the special is part of CBS’ new “Live for the Moment” reality series co-produced by Jeff Probst, host of the network’s popular “Survivor” series.
The first segment of the series profiles Roger Childs, 42, of Broomfield, Colo., and the ways in which he is working to live life to fullest with his wife and two young sons. Childs, who has had ALS for eight years, considers himself lucky to be slowly progressing with the disease and still able to walk.
The effects of ALS don’t diminish his zeal for helping to spread the word about the imperative to find treatments and a cure for ALS by serving as an example.
“You see life from a completely different perspective” when you have ALS, he says. “You live each day with a passion.”
Some of the things he wanted to do, and that are captured on video for the TV special, were watching a NASA space shuttle launch and meeting astronauts; flying in the back of a two-seater jet at nearly the speed of sound; and going heli-skiing.
When in the jet, as the pilot executes multiple barrel rolls, Childs shouts out exuberantly, “You can do as much of that as you want!” At the top of the ski slope he’s uncertain, fearful that his weakened muscles won’t be able to handle the turns, but he goes for it anyway. It’s slow and laborious, but he stays upright all the way down the mountain.
Childs’ story exemplifies the importance of making time for what’s most meaningful in your life, says Scott Wiebe, MDA National Director of Outreach Initiatives and ALS Division.
“Roger’s story also is important because it keeps ALS in the spotlight. Maintaining public awareness and support is vital to MDA’s ALS research efforts.”
CBS has scheduled the show to air on Jan. 28 at 8 p.m. Eastern Time/Pacific Time. Check local CBS listings for the time in your area.