2013 BMD Conference Covered Research, Medical Care and Daily Life

The daylong, MDA-supported conference held Aug. 24, 2013, focused on all aspects of Becker muscular dystrophy; videos are now online

by Margaret Wahl on September 11, 2013 - 12:15pm

The 2013 MDA-supported Becker Muscular Dystrophy Conference, held Aug. 24 in Baltimore and co-hosted by MDA and Johns Hopkins Medicine, was "high-energy" with "phenomenal" presenters, says Annie Kennedy, MDA's senior vice president of advocacy, who attended and helped organize the meeting.

Some 130 people attended in person and many more, including some from outside the United States, attended online.

The all-day conference featured speakers on a variety of topics relevant to people with Becker muscular dystrophy (BMD), including drug trials, basic research, genetic diagnosis, clinical care and optimizing daily life. (For more information on daily life and transitioning to adulthood for teens and young adults with BMD and other neuromuscular diseases, see the MDA Transitions Center.)

All conference sessions were recorded.

Conference videos now available

Videos of the conference sessions — each lasting approximately 20 to 40 minutes — have now been posted.

To learn more, see:

  • Optimizing the Lived Experience of BMD — Mario Damiani, J.D., Brett Felter, J.D., and Christopher Rosa, Ph.D., member of MDA Board of Directors, MDA Task Force on Public Awareness and MDA Transitional Services Task Force

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Mark your calendar

Next year's MDA BMD Conference will be held Saturday, Aug. 2, 2014, in Dallas.

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