Discussion - LGMD 2I

Hello, I just signed up today as a mother of a 12 year old son who was diagnosed just about 2 years ago. As you can probably guess we are struggling to come to terms and we have good and bad days. We would appreciate any information any of you can share about things you have tried, things that work,etc. Do any of you have children this age that might want a pen-pal? I can sense that support is a key factor that keeps everthing together. Thank you