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QUEST Vol. 17, No. 1

January 1, 2010 - March 31, 2010

Cover Story

Heroes, Hope and Hollywood

How a father led a quest to discover a treatment for his critically ill children, and ended up the subject of a major motion picture

Most anybody who hears John Crowley’s story will call him a hero.

It’s a logical label for a man who led a quest to develop a treatment to stop the disease killing two of his young children.

The Crowley family’s incredible story has been chronicled in the media, a book and now a major Hollywood feature film. “Extraordinary Measures” will be released Jan. 22 with an A-list cast that includes Harrison Ford, Brendan Fraser and Keri Russell.

But even when Crowley pauses to look back at the experience, he balks at the word “hero.”

Features

A Happy Compromise
Tips for achieving quality of life and independence by living with paid personal attendants and their familes
Epigenetics: Above and Beyond Genes
Studying the mechanisms controlling gene activity
In Sickness, in Health and in Love
New DMD Care Recommendations Released

Departments

Book Reviews
Books Winter 2010
From Where I Sit
Turning to Each Other
InfoQuest
InfoQuest Winter 2010
Keeping in Touch
Keeping in Touch Winter 2010
MDA Advocacy Report
'This Year, I Resolve ...'
MDA Mailbag
MDA Mailbag Winter 2010
MDA Matters
MDA Matters Winter 2010
Product Peeks
Product Peeks Winter 2010
Quest Tech
Coming In Loud and Clear

In Focus

There are no In Focus articles in this Quest Issue

Research Updates

Research Updates Winter 2010
Clinical Trials Winter 2010

Quest Extra

Through the Pipeline, as Fast as Possible
MDA's research program in 2010
The Race Isn't Over
John Crowley talks about what's needed in the "golden age" of drug development
A Tax 'Carrot' for Business
Tax breaks for workplace modifications can benefit employees with disabilities and employers.
SSDI: For Some It's a Surprise Bonus
Taxpayers: the Bell Tolls for Thee (So Look Sharp for Deductions)
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