QUEST Vol. 17, No. 1

January 1, 2010 - March 31, 2010

Cover Story

How a father led a quest to discover a treatment for his critically ill children, and ended up the subject of a major motion picture

Most anybody who hears John Crowley’s story will call him a hero.

It’s a logical label for a man who led a quest to develop a treatment to stop the disease killing two of his young children.

The Crowley family’s incredible story has been chronicled in the media, a book and now a major Hollywood feature film. “Extraordinary Measures” will be released Jan. 22 with an A-list cast that includes Harrison Ford, Brendan Fraser and Keri Russell.

But even when Crowley pauses to look back at the experience, he balks at the word “hero.”


Tips for achieving quality of life and independence by living with paid personal attendants and their familes
Studying the mechanisms controlling gene activity
Keeping the romance alive when your caregiver is your partner


In Focus

Research Updates

Quest Extra

MDA's research program in 2010
John Crowley talks about what's needed in the "golden age" of drug development
Tax breaks for workplace modifications can benefit employees with disabilities and employers.