New Guideline for FSHD Diagnosis and Care

New Guideline for FSHD Diagnosis and Care

The American Academy of Neurology and American Association of Neuromuscular & Electrodiagnostic Medicine have published new recommendations for doctors who see patients with facioscapulohumeral muscular dystrophy

It's Myasthenia Gravis Awareness Month 2015

It's Myasthenia Gravis Awareness Month 2015

A look at symptoms, diagnosis, treatments and current MDA-supported research into this complex autoimmune disorder

New Guideline for CMD Diagnosis and Care

New Guideline for CMD Diagnosis and Care

A committee convened by the American Academy of Neurology has published new recommendations for doctors who see children with congenital muscular dystrophy

CMD: Phase 1 Omigapil Trial Remains Open

CMD: Phase 1 Omigapil Trial Remains Open

Santhera Pharmaceuticals is testing anti-cell death compound omigapil in children and teens with merosin-deficient and Ullrich congenital muscular dystrophies

FDA OKs Testing of OPMD Drug in US

FDA OKs Testing of OPMD Drug in US

Israel-based BioBlast Pharma says a California site will be added soon to locations already testing Cabaletta in oculopharyngeal muscular dystrophy in Israel and Canada

SMA: ISIS-SMNRx To Be Tested in Presymptomatic Infants

SMA: ISIS-SMNRx To Be Tested in Presymptomatic Infants

The experimental antisense drug will be tested in infants with a genetic spinal muscular atrophy diagnosis who are to date without symptoms

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posted on October 8, 2015 - 9:21am
Each day across America, the children and adults we serve and represent demonstrate inspiring can-do spirit and strength, often defying remarkable odds through their actions — from unforgettable events like walking a daughter down the aisle, skydiving or hiking the Grand Canyon, to everyday moments like starting kindergarten, going to college or sharing a laugh with a loved one.