posted on October 1, 2011 - 3:37pm
Technology has put the world into the palms of our hands through hand-held mobile devices such as the iPad, smartphone and e-reader. But when disability caused by muscle disease takes the “hand” out of “hand-held,” the tips and products detailed in this article may help.
posted on March 31, 2011 - 11:57am
Note: This article was updated Sept. 19, 2011.
Video games have a reputation for being big time-wasters. But what if you could help solve scientific mysteries — such as unraveling the origins of a genetic disease — at the same time as you’re having fun?
That’s the idea behind several new online games designed to harness the collective brain power of computer users — a process known as “...
posted on October 1, 2010 - 5:00pm
For many people, being able to walk or run is no big deal. But for sisters Lauren and Claire Gibbs of Roeland Park, Kan., it is a very big deal indeed.
posted on July 1, 2010 - 11:31am
People with disabilities are more apt than the general population to encounter situations in which they need help, whether it’s emergency medical treatment or simply assistance getting from one location to another in the house. Fortunately, several devices and services are available to help out in these circumstances.
Cell phones
It’s logical that cell phones, given their presence nearly...
posted on March 31, 2010 - 11:05am
Going back to school is hard, especially when you’re 51 years old and going back for your bachelor’s degree.
I grew up with type 3 spinal muscular atrophy, so I understand and can deal with my disability. But every year I get weaker, so I continue to need to find ways to compensate and — in the case of going back to school — to figure out such problems as handling my textbooks, taking notes and...
posted on December 31, 2009 - 1:00am
Are you straining to speak loudly enough to be heard? Are you tired of being asked to repeat yourself — or of being ignored altogether? One solution: a low-tech communication aid called a voice amplifier, which boosts a weak voice to a normal level.Soft, airy speech
posted on October 1, 2009 - 3:34pm
An ambitious proposal from the Obama Administration seeks to provide an electronic health record (EHR) for all Americans by 2014. It’s a proposal with far-reaching implications for anyone who receives professional health care, and it has both supporters and detractors.
posted on July 1, 2009 - 2:38pm
Jayne uses the Impulse sensor to start scanning the wheelchair-driving software, which displays the drive function and a directional grid on his wheelchair-mounted laptop.
posted on April 1, 2009 - 10:12pm
Note: People with muscle diseases always should consult their physicians and MDA clinic team, particularly physical and occupational therapists, before beginning any exercise or weight loss program.
posted on January 1, 2009 - 3:39pm
In Pearland, Texas, Connie Guinn worked tirelessly for several months to gain access to a speech-generating device for her son Benjamin, 6, who has myotubular (centronuclear) myopathy.
With the exception of making noises and sounds, Benjamin was nonverbal. Guinn had tried to help her son learn sign language without much success.
