posted on January 1, 2012 - 12:55pm
The U.S. Power Soccer Team went head to head with the best in the world last fall and came away champions of the 2011 FIPFA World Cup. It’s the second win for Team USA, which previously won the 2007 Cup in Japan.
Returning as undefeated champions, expectations were high for the U.S. players.
posted on October 1, 2011 - 8:49am
From the moment Linzey Zoccola received her first service dog at age 16, she knew what she wanted to do with her life.
Zoccola has type 2 spinal muscular atrophy and has used a power chair since the age of 4. She has always been strongly independent, but having a service dog was a revelation.
Here was a creature that not only brought her joy and companionship, but also helped her perform tasks at...
posted on October 1, 2011 - 8:32am
Bedtime is when I prefer to curl up with a good book.
Hunching over the hardcover in the dark, I squint and squirm trying to find a comfortable position and read my Book Club’s selection of the month. A lamp would disturb my husband’s slumber, so I use a book light. The tiny beam needs constant adjusting. To save eye strain, I’ve even borrowed the “large type” books from the library. No matter...
posted on October 1, 2011 - 8:30am
The most important element of disciplining a child is to have your anger under control when doing the disciplining. When your anger is under control, you earn respect from your child, the discipline will be effective, and you are modeling how children can handle their own anger in a healthy manner.
Your anger is under control when:
posted on October 1, 2011 - 8:15am
David Davison is a friendly, outgoing young man who loved attending school. But last year, as David’s Duchenne muscular dystrophy progressed, his arm and hand strength decreased to the point where he could no longer participate in many classroom activities.
Then one day, David’s special education class at Placer High School in Auburn, Calif., received a gift from a local service club: a new...
posted on June 23, 2011 - 3:29pm
“I have a degree in biochemistry, and no experience in physiotherapy.” I kept reminding myself of this fact as Suse, a volunteer from Germany, and I first walked into the Duchenne Muscular Dystrophy (DMD) Centre for Boys in Bhaktapur, Nepal.
posted on June 14, 2011 - 2:30pm
Ralph Braun clearly remembers the day he learned he had “muscular dystrophy.” The experience taught him a lesson that shaped who he is and helped drive him to achieve great success.
In his autobiography, Rise Above, (2010, The Braun Corporation), Braun describes the hot day in 1947 when his parents took him to be evaluated at a hospital in Indianapolis. Braun was 6, and had been having...
posted on March 31, 2011 - 11:44am
I never thought I would be so excited about getting a new toilet, sink and shower. But my new fully wheelchair-accessible bathroom has made such a difference in my life, my attitude and my outlook that I can truly say this makeover has been a life-changing event.
More than 10 years ago, I received a diagnosis of ALS (amyotrophic lateral sclerosis, or Lou Gehrig’s disease). Over the years, I’ve...
posted on March 31, 2011 - 10:32am
In our print magazine, we didn't have room to feature the many wonderful examples of summer camp-related artwork from the MDA Art Collection. So we offer you this special Quest Extra slideshow, "Images of MDA Summer Camp," showcasing selected paintings, drawings, and pottery from a wide range of young artists from across the country.
posted on March 31, 2011 - 10:23am
I am writing this article about getting a tracheostomy for others with muscular dystrophies. Many patients are reluctant to have the procedure done because they fear they will lose the ability to talk or to swallow. Neither is true. And, the new trach tubes make it possible to easily take care of a tracheostomy and the tubes.
