Quest Extra

posted on July 7, 2014 - 9:09am
Quest Summer 2014
Can We Have It Now?
posted on July 7, 2014 - 9:09am
Quest Summer 2014
Abby Bronson is the Duchenne muscular dystrophy program manager at Children's National Medical Center in Washington, D.C., where she works with various stakeholders to further therapeutic development for this disease. Bronson has a master's degree in business administration from the University of Pennsylvania and has managed new product development and marketing at biotechnology and...
posted on July 7, 2014 - 9:09am
Quest Summer 2014
Arthur Caplan is the William F. and Virginia Connolly Mitty Professor and founding head of the Division of Bioethics at New York University Langone Medical Center in New York City. He holds a doctoral degree in the history and philosophy of science from Columbia University, has authored or edited 32 books and more than 600 papers, and has served on national and international committees as an...
posted on July 7, 2014 - 9:09am
Quest Summer 2014
Richard Klein is the director of the Patient Liaison Program at the Office of Health and Constituent Affairs at the U.S. Food and Drug Administration (FDA). Q: What is the most common misconception that patient communities have about the FDA's accelerated approval mechanism?
posted on July 7, 2014 - 9:09am
Quest Summer 2014
Timothy Miller has been a university-associated neurologist specializing in neuromuscular disorders who has recently moved to the biotechnology industry. He has been the director of the MDA-supported pediatric neuromuscular disorders clinic at Children's Clinics for Rehabilitative Services in Tucson, Ariz.; an assistant professor of neurology, pathology and pediatrics at the University of Arizona...
posted on April 1, 2014 - 9:27am
Quest Spring 2014
"I’m on CellCept, prednisone, Mestinon and IVIG every three weeks," says 38-year-old Rachel Pegram. "Prednisone, which I have taken for more than 22 years now, has very rough side effects. It has caused weight gain, diabetes and glaucoma. I cannot say I have ever gone into remission without drugs, but I believe I have been in a drug-induced remission. I have spent a lot of time in hospitals for...
posted on April 1, 2014 - 9:15am
Quest Spring 2014
For years, I have been told by accessible travel professionals that cruising is a terrific option for wheelchair users. My husband, Jim, is not particularly fond of water and had a long list of preconceived notions regarding nautical travel. After a great deal of coaxing, we sailed on Holland America Line’s Veendam, a mid-size ship carrying 1,350 passengers and 560 employees. The seven-day trip...
posted on January 9, 2014 - 9:21am
Quest Winter 2014
To exercise or not to exercise? I can almost hear the people reading this article screaming, “NOT!” Truthfully, until about a year ago, I would have been screaming NOT the loudest, the longest and with absolutely no hesitation. Author Danise Armstrong riding her tricycle. Living with CMT
posted on November 19, 2013 - 11:05am
Quest Vol. 20, No. 4
After nine years of courtship, my partner Richard and I are discussing The Future. Children, marriage and home ownership are now notching out deeper spaces in our daily dialogue. Like many couples, we’re both scared of The Future. We’re concerned we won’t be fully equipped for what may come — those ripples that may make life a little more difficult. We’ve already experienced hardships that we’ve...
posted on October 3, 2013 - 9:27am
Quest Vol. 20, No. 4
Self-confessed workaholic Jon Morrow is an entrepreneur and the CEO of BoostBlogTraffic.com — a company that grossed nearly half a million dollars last year and is expected to double that amount this year. Thirty-year-old Morrow has always been a smart overachiever, graduating from high school at 16, starting three businesses before he was 18 (two game-development companies and a software company...