Quest Departments

posted on July 14, 2015 - 3:21pm
Quest Summer 2015
Traveling can be scary, especially if you have a physical disability. In my own travels over the years, I’ve been trapped in a bathroom, dumped out of a car onto Fifth Avenue, toppled over in a moving bus, stranded in a subway tunnel and even showered with glass after accidentally shattering a revolving door. Despite its inherent challenges, though, traveling also can be an exciting and...
posted on July 14, 2015 - 3:19pm
Quest Summer 2015
Children and adults living with neuromuscular diseases are not only awaiting progress in the search for treatments and cures; they are directly supporting and advancing that progress in real and significant ways.
posted on July 14, 2015 - 3:17pm
Quest Summer 2015
On July 26, 1990, President George H.W. Bush signed into law landmark civil rights legislation called the Americans with Disabilities Act (ADA), which is intended to eliminate barriers for people with disabilities. The law mandates that individuals with disabilities have equal access to public accommodations, employment, transportation, state and local government services, and telecommunications.
posted on July 14, 2015 - 3:15pm
Quest Summer 2015
When I rolled into the hospital room, I looked around and saw monitors with blue and green lines and a red line that looked like something we typically see on TV medical shows. Is that a heartbeat? A sterile smell filled my nostrils. I saw machines and heard constant beeping. Nurses glided in and out of the room checking tubes and pressing buttons. But when I looked at the bed, it wasn’t me who...
posted on July 14, 2015 - 3:07pm
Quest Summer 2015
"Scientists have been trying to find it for hundreds of years, pouring tons of money into research, and to this day they don't have a theory. The elements found in a human being is all junk that you can buy in any market with a child's allowance. Humans are pretty cheaply made," begins a passage from Hiromu Arakawa's Fullmetal Alchemist series. I learned this fact the hard way in...
posted on July 14, 2015 - 3:03pm
Quest Summer 2015
Powerful Research MDA welcomes a neurological disease expert to the family
posted on July 14, 2015 - 3:01pm
Quest Summer 2015
Future focused Editor’s note: MDA’s announcement that it will no longer host an annual telethon in favor of channeling resources into other ways to raise funds and awareness for its families year-round has sparked many comments on Facebook. For more on this topic, see Uniting Today for a Better Tomorrow in Access MDA. 
posted on April 21, 2015 - 9:21am
Quest Spring 2015
Like all people living with amyotrophic lateral sclerosis (ALS), Joan Sucher, 65, a mother of three adult children in Ballwin, Mo., was devastated when she received her diagnosis. “My life collapsed,” Sucher shares in an email interview with Quest. “We were inconsolable. I had been healthy and active all my life. I ran regularly and finished nine half marathons after age 48. And I had no family...
posted on April 21, 2015 - 9:19am
Quest Spring 2015
When I was 2, I was diagnosed with central core disease (a disease that causes problems with the tone and contraction of skeletal muscles). Doctors told my parents, who were trying to wade through the unknown waters of this thing called “neuromuscular disease,” that I would never be able to walk on my own without a walker or crutches. But years of physical therapy, leg braces, a walker and a pair...
posted on April 21, 2015 - 9:17am
Quest Spring 2015
ALS, also known as amyotrophic lateral sclerosis and Lou Gehrig’s disease, is among the most feared diseases facing people in the U.S. and worldwide. In ALS, the motor neurons — the nerve cells of the brain and spinal cord that control muscle action — mysteriously deteriorate, often within just a few years, leaving behind orphaned muscle fibers. Without signals from motor neurons, voluntary...