The approval of new drugs in the United States is a complex process that seeks to balance the need to protect the health and safety of the population with the need to provide treatment as soon as possible for serious or life-threatening disorders.
Entering into the world of disability should come with a giant neon sign that reads “Warning: Technology Ahead.” It’s inescapable. Not only is it all around us but for many of us, technology keeps us alive well beyond what the naysayers predict.
Different neuromuscular diseases progress at different rates, but eventually we all start losing mobility, strength and/or dexterity. Some of us will...
Individuals with neuromuscular disorders oftentimes spend a great deal of time in the hospital and even more time interacting with those who work in the medical profession. In their interactions with medical personnel, some individuals are lucky enough to experience more than the expected amount of caring.
Anyone using a wheelchair, even for a few hours a day, needs to sit on a cushion. The most obvious reason for using a wheelchair cushion is simply to offer general comfort by reducing friction and vibration. A good cushion also can wick away moisture and keep you cool.
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The Quest archives are jam-packed with informative articles about living with neuromuscular disease. In order to share (or re-share) some with you, Quest will be highlighting 20 back-issue articles in each 2013 issue.
Take a peek. It’s just around the corner … “the best week of the year!” Also known as MDA summer camp, children ages 6 to 17 who are registered with MDA can attend camp at no cost to their families. Nearly 80 accessible camp sessions across the country are supported by MDA, offering a wide variety of activities, which may include fishing, archery, horseback riding, adapted sports...
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Put together the words amyotrophic lateral sclerosis (ALS) and the phrase clinical trials expert, and one name that is sure to follow is Merit Cudkowicz.
Cudkowicz is chief of neurology and director of the Neurology Clinical Trials Unit and the ALS Center at Massachusetts General Hospital (MGH) in Boston. The longtime MDA grantee also directs the MDA/ALS Center at MGH (one of five sites in MDA’s...