After nine years of courtship, my partner Richard and I are discussing The Future. Children, marriage and home ownership are now notching out deeper spaces in our daily dialogue.
Like many couples, we’re both scared of The Future. We’re concerned we won’t be fully equipped for what may come — those ripples that may make life a little more difficult. We’ve already experienced hardships that we’ve...
A Closer Look: LGMD Research Slideshow
Say “limb-girdle muscular dystrophy” to most people, and you’ll get a questioning look. They may wonder what kind of girdle is being talked about and how limbs fit into the picture.
The name actually comes from an anatomical term describing the supporting structures of the shoulders and hips, including bones and muscles. Limb-girdle muscular dystrophy...
Self-confessed workaholic Jon Morrow is an entrepreneur and the CEO of BoostBlogTraffic.com — a company that grossed nearly half a million dollars last year and is expected to double that amount this year.
Thirty-year-old Morrow has always been a smart overachiever, graduating from high school at 16, starting three businesses before he was 18 (two game-development companies and a software company...
Mom (top, 2011) climbed to the top of a White Sands, N.M., dune with me just two years before her muscles were too weak to support her own breath.
Individuals affected by neuromuscular disease are at increased risk of serious and possibly life-threatening complications from the flu, so it's important that everyone stays informed and takes steps to protect themselves and their families. Be sure to visit MDA's Flu Season Resource Center to learn more.
In addition to receiving a flu vaccine, there are many other ways to protect yourself and...
The Quest archives are jam-packed with informative articles about living with neuromuscular disease. In order to share (or re-share) some with you, Quest has highlighted 20 previously published articles in each 2013 issue. This is the last installment in honor of Quest's 20th anniversary!
In its Summer 2013 round of grants, MDA awarded 31 new grants totaling $8.5 million.
For the entire day today, and perhaps throughout the weekend or longer if I can subdue my natural (or is it learned) character, I vow that I will accept all of the kindness, generosity, love and care given to me on this day and every day forward without guilt or a feeling of obligation.
Times have changed dramatically since 2001, thanks to the passage that year of the Muscular Dystrophy Community Assistance, Research and Education (MD CARE) Act — a bill designed to advance research and health care for all forms of muscular dystrophy. Among the changes: