Knowing your exact genetic diagnosis does more than just satisfy your curiosity — it can impact family planning, disease management and participation in clinical trials
posted on February 28, 2012 - 2:02pm
Respondents to MDA’s Transitions Survey — in other words, people with a neuromuscular disease who are in their teens through late 30s — made it clear they had questions about the genetics of their disease, as well as questions about family planning and the value of diagnostic testing.
MDA’s Genetic Counseling Webinar, which occurred Feb. 22, 2012, answers many of those questions.
Get those cameras ready! MDA is seeking Make-a-Muscle pix and photos of accessibility makeovers
posted on July 28, 2011 - 10:33am
This summer, MDA is inviting everyone to participate in its new "Make a Muscle, Make a Difference" public awareness campaign by submitting photos of friends and family flexing their muscles for MDA.
MDA also is seeking photos for its "Accessible Spaces Gallery" debuting in August on the MDA Transitions Resource Center, a website designed to help young people with muscle diseases make the...