Finding a new job for the summer in a new city and learning the value of embracing the unexpected
I decided to go to business school because I wanted to propel myself into a new career in a new industry. Leaving the tech world for the life sciences field would be no easy transition, and I realized a master’s degree would be my best way to accomplish this goal.
For many young adults with neuromuscular disease, the challenges and rewards of college offer a steppingstone to greater independence
“I was already signed up for Duke, and was wait-listed for Yale, but waiting for Harvard. When I opened the Harvard letter, I got the shock of my life, and that was it!” says 17-year-old Caroline Zheng on being accepted to her dream school, Harvard, where she’ll start classes in the fall.
The best way to challenge misconceptions about what it means to have a disability is to share our stories and celebrate our differences
When I was 2, I was diagnosed with central core disease (a disease that causes problems with the tone and contraction of skeletal muscles). Doctors told my parents, who were trying to wade through the unknown waters of this thing called “neuromuscular disease,” that I would never be able to walk on my own without a walker or crutches. But years of physical therapy, leg braces, a walker and a pair...
A strong support system makes it possible for one gifted student with Duchenne muscular dystrophy to pursue his dreams
Raymond Walter isn’t your typical teenager. Having graduated from high school at age 14 and from college at 18, he’s already knee-deep in his doctoral studies in mathematics and physics as a Distinguished Doctoral Fellow and a National Science Foundation Graduate Research Fellow at the University of Arkansas at age 19.
MDA advocacy efforts are focused on accelerating research advances and treatment discovery while expanding the resources available to those affected with the disease
Today, research discoveries are bringing us closer than ever to effective therapies for spinal muscular atrophy (SMA) and other neuromuscular diseases. Medical knowledge of neuromuscular disease is broadening, and children and adults with these diseases are living longer, fuller lives.
But significant challenges remain.
People from MDA's SMA community share their experiences in an effort to raise awareness of the disease and its effects
The experiences of people with spinal muscular atrophy (SMA) teach and help raise awareness about the disease, and are inspiring — and often entertaining — as well.
For a wealth of personal stories, anecdotes and perspectives about transitioning to adulthood with a muscle disease, check out the MDA Transitions Center blogs penned by members of MDA's SMA community:
MDA is partnering with federal agencies and other groups serving youth with disabilities to break down barriers for young people transitioning from childhood to adulthood
Like many high school seniors, Drew is busy choosing a college and preparing for the big transition from life at home to life on a college campus. Unlike his peers, Drew has Duchenne muscular dystrophy.