Tom Crawford

One-hour webinar, ‘Straightening the Growing Spine,” describes bracing and surgery options for children with a spinal curvature caused by a neuromuscular disorder

posted on January 25, 2013 - 10:23am
A one-hour, MDA-sponsored webinar features two physicians and the parent of a child with spinal muscular atrophy (SMA) who has undergone bracing and surgery for a spinal curvature, as well as questions and answers from listeners.

In the past, children with rapidly progressive neuromuscular scoliosis often underwent growth-stopping spinal fusion. Today, there are more options.

posted on January 7, 2013 - 10:51am
Quest Vol. 20, No. 1
Payton Mueller's parents knew something was amiss by the time he was 9 months old.

An overview of SMA and current research, including video interviews with researchers

posted on April 1, 2009 - 10:42am
QUEST Vol. 16, No. 2
SMA is caused by a deficiency of a motor neuron protein called SMN (survival of motor neurons). This deficiency results when there is a faulty gene on chromosome 5. The disease causes a loss of nerve cells (motor neurons) in the spinal cord. One in every 40 people carries the gene flaw that causes SMA. Both parents must carry the gene flaw for SMA to be passed on; each of their children has a 25...