I’m 44 years old, and was officially diagnosed with Friedreich’s ataxia (FA) at age 19, so you might say this article is 25 years in the making! I can tell you with absolute certainty that over these 25 years I’ve learned that “we’re all in this together.”
Relatives can be a source of support or sabotage. You can get the backing you need from your family — sometimes.
Bible stories, fairy tales, legends and myths are full of accounts of families. Many of them are quite horrible. Betrayal, abandonment, deception and outright acts of hostility are common themes. Think of Cain and Abel, or Hansel and Gretel, or King Arthur or that whole big quarrelsome family of Greek gods.
Yet — despite these warnings — when the chips are down, we expect our extended family (...