support groups

posted on March 1, 2007 - 11:27am
An Internet chat can be a lifeline to the larger world for people with neuromuscular diseases. And chat hosts are holding the end of that lifeline, pulling in people from around the world seeking companionship, support and information. MDA offers some 20 online chats each month, and is lucky to have more than 50 volunteer chat hosts helping chats run smoothly and ensuring chatters feel safe and...
posted on May 1, 2005 - 9:49am
At a recent MDA picnic in Shawnee Mission, Kan., Mary Millet looked around for her teenage son Patrick, who has Duchenne muscular dystrophy (DMD). She found him sitting away from the crowd, hanging out with a small group of teens. The normalcy of this event — teens gathering to talk and laugh privately — struck a familiar chord in Millet’s heart. She knew that teens don’t want to hang out with...