Caring for your child starts with a healthy, happy you
All parents make sacrifices in caring for their children, and it’s widely acknowledged that parenting is a full-time job.
But parents of children with muscular dystrophy or other neuromuscular diseases know that their job is fulltime and then some. And although this job carries great joy, it also carries a higher-than-average risk of anxiety, depression and exhaustion — commonly called burnout.
Overcoming sleep problems
Scott Porterfield of Hilliard, Ohio, says he's occasionally had to spend the night in his wheelchair because he's found it impossible to get comfortable in bed.
Porterfield, who's 6 feet 3 inches tall and weighs 200 pounds, has Becker muscular dystrophy and enough muscle weakness to keep him nearly immobilized without mechanical aids. His shoulders are uneven, making the left one higher than the...