MDA families drive progress in the fight against neuromuscular disease
Since our last issue, we lost two giants who prominently represented all of us in the MDA family — former National Goodwill Ambassadors Mike Neufeldt and Benjamin Cumbo III. Mike brought an irrepressible sense of joy to everything he did, and Ben demonstrated remarkable grace and unfailing good humor throughout his lifelong battle against muscular dystrophy.
Celebrating scientific advancement, MDA summer camp and more
I am often asked what’s the single most important way we at MDA can best serve our families and best represent our donors. While MDA is delighted to provide an array of services and support, we believe our greatest opportunity for impact is to mobilize aggressively on the front lines in the discovery of treatments and cures.
Accelerating progress in 2015 — and beyond
MDA’s resolve and action steps to accelerate progress on behalf of our families fighting muscle disease has never been greater. People fighting these difficult diseases are depending on MDA to fulfill our mission to save and improve their lives.
To most effectively help our families, MDA must be very intentional about building on the scientific and medical progress we have led for the past...
Challenge Accepted: Finding inspiration and hope in the ALS Ice Bucket Challenge
From MDA camp to promising drug trials, summer brings reasons to be hopeful
Can you hear it? It’s the sound of children’s laughter at nearly 80 MDA summer camps across the country. At MDA camp, thousands of kids with muscle disease discover a world where barriers don’t exist, and they meet many other kids sharing the same needs and experiences. It’s a place where kids can just be kids, as they build lifelong friendships and gain increased self-confidence.
Fighting the good fight: Celebrating IAFF and all who help us battle muscle disease
As I meet and work with more and more people in the MDA community — families, staff, volunteers, donors and national partners — I’m amazed at the tenacity that drives our lifesaving mission. We are an army mobilized in the fight against muscle disease.
A breathtaking view: Visions for 2014 worthy of the work ahead (CEO update)
As I travel from state to state, city to city, I continue to have the privilege of meeting ordinary people doing extraordinary things. They faithfully pledge their leadership and support to MDA, making it possible for us to fund worldwide research, provide comprehensive health care services and support to MDA families nationwide, and rally communities to fight back against muscle disease.