posted on March 1, 2003 - 12:58pm
You may never have heard of Pompe’s disease. It affects just 5,000 to 10,000 people in the United States, making it exceedingly rare and of little interest to the general public. But what it lacks in notoriety, it makes up for in personal devastation to those who have it.

New content is being added every day. Please check back again.