research being done on Ullrich and Bethlem and congenital muscular dystrophies

Families affected by Ullrich congenital MD or Bethlem myopathy are invited to help with data collection at the University of Utah

posted on July 22, 2010 - 12:44pm
Families affected by either of two forms of congenital muscular dystrophy (CMD), known as Ullrich CMD and Bethlem myopathy, are invited to help with an MDA-supported data collection project at the University of Utah in Salt Lake City. The project's investigators are seeking to correlate genetic and clinical (symptom-related) information to improve understanding of these diseases and begin to...

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