president and ceo

MDA families drive progress in the fight against neuromuscular disease

posted on July 14, 2015 - 3:00pm
Since our last issue, we lost two giants who prominently represented all of us in the MDA family — former National Goodwill Ambassadors Mike Neufeldt and Benjamin Cumbo III. Mike brought an irrepressible sense of joy to everything he did, and Ben demonstrated remarkable grace and unfailing good humor throughout his lifelong battle against muscular dystrophy.

Celebrating scientific advancement, MDA summer camp and more

posted on April 21, 2015 - 9:00am
Quest Spring 2015
I am often asked what’s the single most important way we at MDA can best serve our families and best represent our donors. While MDA is delighted to provide an array of services and support, we believe our greatest opportunity for impact is to mobilize aggressively on the front lines in the discovery of treatments and cures. 

From MDA camp to promising drug trials, summer brings reasons to be hopeful

posted on July 7, 2014 - 9:01am
Quest Summer 2014
Can you hear it? It’s the sound of children’s laughter at nearly 80 MDA summer camps across the country. At MDA camp, thousands of kids with muscle disease discover a world where barriers don’t exist, and they meet many other kids sharing the same needs and experiences. It’s a place where kids can just be kids, as they build lifelong friendships and gain increased self-confidence. 

Fighting the good fight: Celebrating IAFF and all who help us battle muscle disease

posted on April 1, 2014 - 9:01am
Quest Spring 2014
As I meet and work with more and more people in the MDA community — families, staff, volunteers, donors and national partners — I’m amazed at the tenacity that drives our lifesaving mission. We are an army mobilized in the fight against muscle disease.