A report on disease management and research as of July 2009
This “In Focus” report is part of a series of MDA comprehensive reports about the latest in neuromuscular disease research and management.
This report focuses on the periodic paralyses, a group of disorders that result from malfunctions in so-called ion channels, microscopic tunnels that make possible high-speed movement of electrically charged particles across barriers inside cells and between...
That’s a word I’m used to hearing from young voices. True to form, a boy was staring at me in the Wal-Mart parking lot as the word was spoken.
But this time, my nephew Carter was the one saying it, while trying to show the staring boy a giant dinosaur balloon. Carter believed the balloon was much more interesting than his Aunt Katrina. He couldn’t understand why the little boy was looking...
Anne Gasser, West Reading, Pa. Charcot-Marie-Tooth disease
Next Christmas I’m giving special awards
Below is a selection of contributions submitted in response to the Quest story, Self-Image and Disability. Each of the opinions expressed below are from people served by MDA.
Be sure to check out the MDA Art Collection for more examples of self-expression by artists with neuromuscular disease.
Maryland boy to represent MDA
He's a best-selling author ... he regularly swaps e-mails with Oprah Winfrey ... and President Jimmy Carter calls him "one of my best friends."
He's also a huge fan of songwriter "Weird Al" Yankovic, loves to play video games, and has an impressive rock collection.
Such is the amazing world of Matthew J.T. Stepanek, the MDA 2002 National...