Susan Perlman, M.D., director of the Ataxia Clinic, Department of Neurology, University of California-Los Angeles, is a neurologist who’s been doing research in, and taking care of individuals with, Friedreich’s ataxia (FA) for some 30 years. In November 2010, she talked with Margaret Wahl, MDA’s medical and science editor.
People of different ages and different muscle disease symptoms describe their exercise routines
In September 2008, Mary Gallo, 38, learned about a local pulmonary rehabilitation gym called Oxygym. She contacted her pulmonologist, who wrote a prescription for Oxygym’s restrictive lung program.
The benefits of standers for children are clear
Ten-year-old Morgan Fritz of St. Peters, Mo., received a spinal muscular atrophy (SMA) diagnosis when she was 15 months old. Three months later, she began a standing program, and she’s kept at it ever since.
A triple option for ambulation
More than 6 million Americans, including many with neuromuscular diseases, use mobility devices such as walkers, canes and crutches to assist them with getting around. The type of device people should use depends on how much assistance they require with weight support and balance. Deciding on the right device calls for expert consultation and some product comparisons.
People of every ability can practice yoga for fun and fitness
Kathy Senecal helps Keith Mullinar, who has inclusion-body myositis, do the pawanmuktasana pose, or seated side stretch.
Move it, stretch it, flex it, lift it, hit the water — just say YES to exercise
Why should having a neuromuscular disease exclude you from exercise and all its benefits?
Perhaps you’re not aware of what forms of exercise you can do, given your abilities. Maybe you have questions and doubts about the intimidating prospects of starting an exercise routine. Or perhaps you’re in the “What good will it do me?” frame of mind.
Getting your child to go with the flow
A wise teenager once said, “I think in order to motivate people, you have to kind of know how they work, and it’s different for every person.”
Krista Fincke of Tarpon Springs, Fla., has experience with not wanting to do physical therapy (PT), take her medications or wear her ankle-foot orthotics (AFOs).