A special needs trust is a way to ensure the financial future of a child with a disability. For more detailed information on special needs trusts (SNTs), see Figuring Out Special Needs Trusts: Fear, Dread and Loathing.
(NOTE: Although most children will be adults when they benefit from an SNT, the term “child” is used in this article because it describes the relationship with the parents.)
Parents become education experts and advocates
If your child has both cognitive and physical disabilities caused by a neuromuscular disease, an Individualized Education Plan (IEP) can make all the difference in getting the best possible school experience for your child. The law requires that the IEP provide for the necessary supports to give your childa complete, appropriate education (see “Glossary” and “Physical and Cognitive...