parental responsibilities

Caring for your child starts with a healthy, happy you

posted on July 1, 2008 - 2:30pm
All parents make sacrifices in caring for their children, and it’s widely acknowledged that parenting is a full-time job. But parents of children with muscular dystrophy or other neuromuscular diseases know that their job is fulltime and then some. And although this job carries great joy, it also carries a higher-than-average risk of anxiety, depression and exhaustion — commonly called burnout.


posted on December 1, 2002 - 12:34pm
Parents of kids with neuromuscular diseases may be preparing to deal with their children’s progressive physical limitations, only to find they also have to cope with cognitive deficits. In other cases, cognitive difficulties are the first symptoms of the child’s neuromuscular disease. In either case, when a neuromuscular disease affects the brain, a new level of care and attention is required...