'Palliative care' means more than 'end-of-life' care for children and families coping with muscle disease
Families face complicated health care decisions when coping with a child’s neuromuscular disease, and the best course of action isn’t always clear. Often, the child’s doctors are in uncharted territory too.
Now, MDA is trying to provide a road map through this confusing, emotional time by offering families and physicians enhanced “palliative care” services for the children it serves.
Hospice focuses on patient's wishes
Smack in the middle of a frosty Michigan winter, Jackie Edwards Jr. was steaming like a hot summer day with anger.
Edwards was fuming mad because he had learned that his mother had passed up tickets to a Metallica concert; she worried it would harm his health.
Dawn Edwards feared that going to a raucous concert by the heavy metal band during cold weather would simply be too much for her son. At...