Nicholas Johnson

The most well-described symptoms of a disease are not always those that have the greatest impact on people living with the disorder

posted on August 6, 2012 - 6:00am
Traditionally, outcome measures — the observations investigators make in a clinical trial to decide whether one treatment is better than another or better than a placebo — are determined by factors in a disease that are considered important by physicians and other professionals. But in recent years, there has been increasing interest in finding out what matters most to people with the condition...
posted on July 1, 2008 - 2:00pm
QUEST Vol. 15, No. 4
I’m 44 years old, and was officially diagnosed with Friedreich’s ataxia (FA) at age 19, so you might say this article is 25 years in the making! I can tell you with absolute certainty that over these 25 years I’ve learned that “we’re all in this together.”

New strategies are positioning MDA's research program for success

posted on January 1, 2008 - 3:06pm
QUEST Vol. 15, No. 1
The fast pace of scientific progress in this first decade of the 21st century, coupled with expanding knowledge about human genetics and disease, has led to significant changes in the way MDA approaches research.

Catching up with past MDA National Personal Achievement Award recipients

posted on November 1, 2007 - 11:12am
QUEST Vol. 14, No. 6
Michael Wasser, 2005 33, Becker muscular dystrophy

MDA's National Personal Achievement Award recipient spreads inspiration, motivation wherever he goes

posted on November 1, 2003 - 1:02pm
Have even a brief conversation with Nicholas A. Johnson and you're likely to come away feeling motivated, upbeat and even inspired. Nick Johnson, on the job, at BR+A Consulting And that's just the way he wants it.