newborn screening survey

Parents of children born in the United States (with or without muscle disease) are encouraged to take a survey about their experiences with newborn screening

posted on August 2, 2012 - 2:07pm
MDA is conducting a survey designed to assess the experiences of parents in the United States whose babies underwent newborn screening at the time of birth, with an eye toward the future possibility of newborn screening tests being recommended for certain neuromuscular diseases in which therapy development is advancing rapidly.

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