National Institutes of Health

A drug that has FDA approval for other indications is being tested in CCD patients who are at least 7 years old

posted on February 13, 2015 - 11:50am
The National Institute of Nursing Research (NINR) at the National Institutes of Health in Bethesda, Md., is conducting a study to determine if an antioxidant drug that has been approved by the U.S. Food and Drug Administration for other indications can reduce the severity of some symptoms in people with central core disease (CCD), a genetic disease caused by defects in a structure known as...

A drug that has FDA approval for other indications is being tested in CCD patients who are at least 7 years old

posted on February 13, 2015 - 11:49am
The National Institute of Nursing Research (NINR) at the National Institutes of Health in Bethesda, Md., is conducting a study to determine if an antioxidant drug that has been approved by the U.S. Food and Drug Administration for other indications can reduce the severity of some symptoms in people with central core disease (CCD), a genetic disease caused by defects in a structure known as...

A drug that has FDA approval for other indications is being tested in CCD patients who are at least 7 years old

posted on February 13, 2015 - 11:48am
The National Institute of Nursing Research (NINR) at the National Institutes of Health in Bethesda, Md., is conducting a study to determine if an antioxidant drug that has been approved by the U.S. Food and Drug Administration for other indications can reduce the severity of some symptoms in people with central core disease (CCD), a genetic disease caused by defects in a structure known as...

A study of whether MRI or MRS imaging of leg muscles can be used to follow the progression of Duchenne MD is open in three states

posted on October 8, 2012 - 5:00am
A multicenter study of the use of magnetic resonance imaging (MRI) and magnetic resonance spectroscopy (MRS) to measure the progression of Duchenne muscular dystrophy (DMD) is open at sites in Florida, Oregon and Pennsylvania for boys with DMD who meet study criteria.
posted on July 1, 2009 - 4:14pm
QUEST Vol. 16, No. 3
The following article contains items about: Duchenne and limb-girdle muscular dystrophies
posted on January 1, 2009 - 6:54pm
QUEST Vol. 16, No. 1
Updated MD-CARE Act is now law The Paul D. Wellstone Muscular Dystrophy Community Assistance, Research and Education (MD-CARE) Amendments of 2008 received final Congressional approval on Sept. 27 and were signed into law by President Bush Oct. 8.
posted on November 1, 2008 - 10:07am
QUEST Vol. 15, No. 6
As the 110th Congress drew to a close this fall, a tremendous victory emerged for people with muscular dystrophy: the reauthorization of the MD-CARE Act. The Paul D. Wellstone Muscular Dystrophy Community Assistance, Research and Education (MD-CARE) Amendments of 2008 updates the 2001 law that coordinates and focuses federal research on different forms of muscular dystrophy, collects...