Solutions to improve everyday mobility and enable increased activity

posted on April 21, 2015 - 9:09am
For many MDA families living with neuromuscular disease, there are few challenges more persistent and more taxing on a daily basis than those related to basic mobility. While each person’s level of physical activity is relative to his or her specific diagnosis — as well as the corresponding exercise parameters established ahead of time by his or her care team — mobility issues affect the entire...

Combating chronic pain in people living with neuromuscular disease requires a multifaceted approach

posted on January 5, 2015 - 9:19am
Quest Winter 2015
It is not breaking news to people with neuromuscular disease that combating pain can be a substantial part of daily life. Unfortunately, chronic pain is a complex symptom to manage, and it may be far more pervasive in neuromuscular diseases than originally thought.  “When I started out, about 25 years ago now, there was nothing,” says Gregory Carter, a doctor who specializes in physical...

Making an informed decision is the key to avoiding buyer's remorse

posted on July 1, 2011 - 4:14pm
QUEST Vol. 18, No. 3
I have buyer’s remorse. Like most people, my closet contains a few items I never should have bought. A paper-thin broom skirt that was shredded by my wheelchair tires the first time I wore it. A bright red handbag that lacks a shoulder strap, forcing me to choose between clutching the accessory or holding onto my wheelchair every time I exit the ramp of my van. Until now, the majority of my...