Uncertain future, unexpected rewards

posted on May 31, 2001 - 5:00pm
It's the kind of thing you think can never happen to you — until it does. Your baby is born with a life-threatening condition that fascinates but puzzles pediatric specialists, while it terrifies you and turns your family's life inside out. Often such surprises come without warning. There's no family history of any such disorder, and prenatal tests have revealed no serious problems. The first...