managing caregivers

Tips for achieving quality of life and independence by living with paid personal attendants and their familes

posted on December 31, 2009 - 1:19am
A wise friend at my Quaker meeting once told me, “It’s a ministry to offer help, but it’s also a ministry to accept help.” Let’s just say that my life situation has given me quite a lot of opportunities to exercise the ministry of accepting help! I was born with type 2 spinal muscular atrophy and left home for graduate school at age 25 never having had anyone except my mother help me with my...
posted on May 1, 2008 - 9:23am
QUEST Vol. 15, No. 3
When you live at home, your parents tend to do everything for you. Food just magically appears in the refrigerator, electricity and water grow on trees and your service dog’s piles in the backyard disappear into thin air.
posted on November 1, 2005 - 9:50am
QUEST Vol. 12, No. 6
It’s not easy to live with another person. “Stuff” comes up, like privacy (“stay out of my stuff”), cleanliness (“pick up your stuff”), respect (“get that stuff outta my face”) and trust (“where’s my stuff?”). Yet many people with physically disabling conditions find that living with a personal care attendant solves more “stuff” than it creates — critical stuff like needing reliable help getting...