Kathy Rivera, 58Tucson, Ariz.type 2 Charcot-Marie-Tooth disease
Like many people with Charcot-Marie-Tooth (CMT), Kathy Rivera didn’t realize she had a neuromuscular disease until relatively late in life. Called “clumsy” as a child, she wore special shoes to keep her feet facing forward, but didn’t receive an official diagnosis of CMT until age 36.
Wendy Salo's doctors told her she was suffering from stress — or perhaps chronic fatigue syndrome. But Salo knew there was something else going on.
At the time, she was in her late 30s. Admittedly, she had reason to be tired and stressed. She had a full-time job developing software for banks, and she had a husband and two teen-age sons.
But, to her way of thinking, those factors couldn't account...
Sheila Smith of Brookhaven, Miss., can't get over the feeling that myotonic dystrophy is an unwelcome, and unexpected, intruder in her family.
It started in November 1998, when her husband, Michael, then 33, had a car accident. "We feel that he fell asleep at the wheel," Sheila says.