John Crowley

How a father led a quest to discover a treatment for his critically ill children, and ended up the subject of a major motion picture

posted on December 31, 2009 - 1:22am
Most anybody who hears John Crowley’s story will call him a hero. It’s a logical label for a man who led a quest to develop a treatment to stop the disease killing two of his young children. The Crowley family’s incredible story has been chronicled in the media, a book and now a major Hollywood feature film. “Extraordinary Measures” will be released Jan. 22 with an A-list cast that includes...

John Crowley talks about what's needed in the "golden age" of drug development

posted on December 31, 2009 - 1:19am
QUEST Vol. 17, No. 1
John Crowley is the father of two children with Pompe disease (acid maltase deficiency). His quest to develop a drug to save their lives is chronicled in the movie "Extraordinary Measures," to be released by CBS Films in January 2010. Crowley was interviewed for the Quest article "Heroes, Hope & Hollywood."  Below are more of his thoughts on the "golden age" of drug development and how...
posted on November 1, 2006 - 2:12pm
QUEST Vol. 13, No. 6
More Than a Mom: Living a Full and Balanced Life When Your Child Has Special Needs, by Amy Baskin and Heather Fawcett, 487 pages, 2006, $18.95. Woodbine House, (800) 843-7323,