Quest shares lessons from parents who have successfully helped their children with muscle diseases grow into self-reliant adults
When Vance Taylor was a boy, he didn’t know any adult he could look to and say, “There’s somebody like me.”
His mother, Morena Noyes, recalls the first time she took Vance and his sister Kathy — both of whom have limb-girdle muscular dystrophy — to MDA summer camp.
“We were still in the parking lot, in our Astro van,” Noyes says. “Vance looked, and then he turned to his sister and said, ‘Kathy,...
Officials learn from MDA panel about improving access to higher education, employment and independent living for people with disabilities
When Angela Wrigglesworth, who has spinal muscular atrophy and uses a power chair, first started college at Texas A&M, she planned to be a business major.
Getting to the business school, however, involved crossing a set of train tracks, and one day, Wrigglesworth’s chair got struck on the tracks.
Wrigglesworth received help from bystanders to free her 300-pound chair before a train came...
Without spending a fortune
If you aren’t ready just yet to design and build that dream home with perfect accessibility, there are a lot of things you can do in the meantime to solve everyday dilemmas.
Getting your own place to live is a significant piece of the independence puzzle.
There are many things to consider before going out on your own. Can you pay your bills? Do you need assistance, and how will you pay for it? How will you cover the basics such as cooking, cleaning and laundry?
The housing situation that will work best for you depends on your abilities, limitations and funding...
You may be getting ready to graduate from high school, re-evaluating your life as an adult living with Mom and Dad, or starting over after the death of a spouse who took care of you for 25 years. For people with neuromuscular diseases, it can take a lot of effort to achieve independence.
When you're independent, you're in charge of your life. You make your own decisions...
Chris Buhl, 24, of Sioux Falls, S.D., has traveled the road to independence. Photos by Brett Jorgensen