'Palliative care' means more than 'end-of-life' care for children and families coping with muscle disease

posted on July 1, 2009 - 11:06am
Families face complicated health care decisions when coping with a child’s neuromuscular disease, and the best course of action isn’t always clear. Often, the child’s doctors are in uncharted territory too. Now, MDA is trying to provide a road map through this confusing, emotional time by offering families and physicians enhanced “palliative care” services for the children it serves.
posted on January 1, 2007 - 4:13pm
QUEST Vol. 14, No. 1
Listening to the Experts: Students with Disabilities Speak Out, edited by Elizabeth B. Keefe, Ph.D., Veronica M. Moore, Ph.D., and Frances R. Duff, M.A., 218 pages, 2006, $19.95. Paul H. Brookes Publishing, (800) 638-3775, A message of inclusion resonates through the personal stories told by special education teachers, students and their parents in this book.