GINA

MDA’s Advocacy program is active in many areas

posted on March 26, 2009 - 9:00pm
Palliative care for kids, transition services for young adults, and genetic discrimination are just some of the projects being worked on by MDA’s Advocacy program, under the energetic direction of MDA Vice President Annie Kennedy. Following are some highlights of these projects. Palliative care in pediatrics
posted on September 1, 2008 - 10:17am
QUEST Vol. 15, No. 5
The Genetic Information Nondiscrimination Act (GINA) that was recently signed into law is an extremely significant piece of legislation for families affected by muscular dystrophy and other genetic conditions. To see why, here’s part of an e-mail exchange I had with a mother with a family history of Duchenne muscular dystrophy. Dear MDA,