A state rehabilitation program remodeled my bathroom — and my life

posted on March 31, 2011 - 11:44am
I never thought I would be so excited about getting a new toilet, sink and shower. But my new fully wheelchair-accessible bathroom has made such a difference in my life, my attitude and my outlook that I can truly say this makeover has been a life-changing event. More than 10 years ago, I received a diagnosis of ALS (amyotrophic lateral sclerosis, or Lou Gehrig’s disease). Over the years, I’ve...
posted on March 31, 2011 - 10:35am
QUEST Vol. 18, No. 2
Need help confronting the costs of home modifications such as a bathroom redo (see Bidets: A Disability Friendly Way to Go)? To help lessen the financial burden of paying for home modifications (including adaptive bathroom equipment and bathroom modifications as well as other home modifications), the resources listed here provide a good starting point in your search for more information...

Local funding source provides life-changing communication device for young boy

posted on January 1, 2009 - 3:39pm
QUEST Vol. 16, No. 1
In Pearland, Texas, Connie Guinn worked tirelessly for several months to gain access to a speech-generating device for her son Benjamin, 6, who has myotubular (centronuclear) myopathy. With the exception of making noises and sounds, Benjamin was nonverbal. Guinn had tried to help her son learn sign language without much success.

Tips to strengthen your case for coverage of power mobility devices

posted on November 1, 2008 - 10:24am
QUEST Vol. 15, No. 6
Getting insurance coverage for a power wheelchair shouldn’t be a struggle. But Medicare, Medicaid or private insurance denials are not uncommon, especially when high-tech features like tilt-and-recline, seat elevators, power leg lifts and standing features are added. But as the sports experts often say, a strong defense wins championships.

Funding challenges and options

posted on May 1, 2008 - 9:34am
QUEST Vol. 15, No. 3
The money game often is riddled with bureaucratic red tape and frustration. However, solutions exist that can help you find the funds you need to win the game. The following articles look at different financial strategies for getting adaptive equipment, home modifications, accessible vehicles, college tuition, medications and more. In every case, it’s necessary to investigate your options, be...
posted on July 1, 2003 - 10:36am
Money — it's a big issue when you're coping with a neuromuscular disease. The search for funds to cover needed equipment, home modifications, drugs, treatments and other expenses, and the fight to get benefits from insurance companies and government agencies can be as stressful as the effects of the disease itself. In this issue, Quest attempts to provide a map of some of the traps, detours and...