first person

A lifelong recipient of medical care finds her own calling and passion on the other side of the exam table 

posted on July 14, 2015 - 3:15pm
When I rolled into the hospital room, I looked around and saw monitors with blue and green lines and a red line that looked like something we typically see on TV medical shows. Is that a heartbeat? A sterile smell filled my nostrils. I saw machines and heard constant beeping. Nurses glided in and out of the room checking tubes and pressing buttons. But when I looked at the bed, it wasn’t me who...

The best way to challenge misconceptions about what it means to have a disability is to share our stories and celebrate our differences

posted on April 21, 2015 - 9:19am
Quest Spring 2015
When I was 2, I was diagnosed with central core disease (a disease that causes problems with the tone and contraction of skeletal muscles). Doctors told my parents, who were trying to wade through the unknown waters of this thing called “neuromuscular disease,” that I would never be able to walk on my own without a walker or crutches. But years of physical therapy, leg braces, a walker and a pair...