family caregivers

Dedicated MDA family caregivers share best practices for supporting loved ones and themselves

posted on October 30, 2014 - 9:19am
“If I was down, who was going to take care of him?” 
posted on April 1, 2009 - 4:13pm
QUEST Vol. 16, No. 2
Letters to Quest: Camp is so important ** Moms on Wheels ** All camps not the same ** No guarantees (life expectancy) ** FMLA and sibling caregivers ** Pay for family caregivers.
posted on September 1, 2005 - 4:13pm
QUEST Vol. 12, No. 5
Those of us with muscular dystrophy would most like a cure, but in the meantime we'd also like governmental policies that support the highest quality of life possible. Instead, those of us with severe disabilities are frustrated by long-term care policies that favor institutionalization and deny us our full rights as citizens.