facioscapulohumeral muscular dystrophy

Activist and entrepeneur receives top achievement honor

posted on October 1, 2010 - 2:15pm
A retired gas industry executive, disability rights activist, green energy entrepreneur and father of a 3-year-old boy has been named the recipient of MDA’s Robert Ross National Personal Achievement Award (PAA) for 2011. Thomas Arrington III, 48, from Chesapeake, Va., was chosen for the honor from among scores of recipients of statewide PAA awards, based on his personal success and achievements,...

Innovative research aims to deepen understanding of the molecular cause of FSHD, with the goal of developing therapies

posted on April 5, 2010 - 5:23pm
MDA has awarded two grants for research aimed at determining the precise molecular causes of facioscapulohumeral dystrophy (FSHD), and developing therapies for the disease. MDA and Friends of FSH Research (FFSHR) based in Kirkland, Wash., will jointly fund a two-year, $200,000 grant to Joel Chamberlain, an assistant professor of medical genetics at the University of Washington in Seattle.

Coping with facial weakness in FSHD

posted on June 1, 1997 - 3:34pm
Songs tell us we're never fully dressed without a smile and exhort us to pack up our troubles in our old kit bags and — smile, smile, smile. Smiling mouths tell us to buy everything from toothpaste and shampoo to diamonds and automobiles, and stylized "smiley faces" peer at us from posters and stickers. There's more space in the brain devoted to muscle control of the face than to any other...