Expert tips for shedding or adding weight to manage one's disease

posted on January 5, 2015 - 9:15am
Any health professional will tell you that good nutrition is a key to living well with and managing a neuromuscular disease. But what if the disease itself makes that goal hard to reach? That’s the all-too-common challenge many people with neuromuscular disorders face.  

The author’s weight loss surgery led her to start an exercise program that provided her with more muscle tone — and a lot of fun

posted on January 9, 2014 - 9:21am
Quest Winter 2014
To exercise or not to exercise? I can almost hear the people reading this article screaming, “NOT!” Truthfully, until about a year ago, I would have been screaming NOT the loudest, the longest and with absolutely no hesitation. Author Danise Armstrong riding her tricycle. Living with CMT

Researchers invite men with Becker MD (ages 15-50) who meet study criteria to participate in a trial to determine whether tadalafil can improve exercise tolerance

posted on October 7, 2013 - 5:00am
Update (May 7, 2014): This trial is now closed to new participants.====================================================================================== original story: A new trial of tadalafil (Cialis), a drug that dilates blood vessels, is now under way at Cedars-Sinai Medical Center in Los Angeles for men with Becker muscular dystrophy (BMD) who meet study criteria.

Neurologist Katherine Mathews discusses exercise in limb-girdle muscular dystrophy

posted on October 3, 2013 - 9:06am
Quest Vol. 20, No. 4
Neurologist Katherine Mathews Katherine Mathews is a neurologist at the University of Iowa Hospitals & Clinics in Iowa City, where she co-directs the MDA clinic. She recently discussed exercise in limb-girdle muscular dystrophy (LGMD) with MDA medical and science editor Margaret Wahl.

'Best practices' for treating various neuromuscular diseases are described in this third and final report on MDA's 2012 Clinical Conference

posted on April 19, 2012 - 6:00am
Several experts presented their views of "best practices" for care of people with neuromuscular disorders at MDA's 2012 Clinical Conference, held in Las Vegas March 4-7. Many questions remain about optimal care in these disorders, but it's clear that attention to heart and respiratory function are of paramount importance. This article looks at:
posted on January 1, 2012 - 12:55pm
QUEST Vol. 19, No. 1
The U.S. Power Soccer Team went head to head with the best in the world last fall and came away champions of the 2011 FIPFA World Cup. It’s the second win for Team USA, which previously won the 2007 Cup in Japan. Returning as undefeated champions, expectations were high for the U.S. players.

Bill Beall and Gail Ableman, who each have Friedreich's ataxia, live independently thanks to 'the kind of love that can overcome challenges'

posted on October 1, 2011 - 2:39pm
QUEST Vol. 18, No. 4
Sharing a life together in Spokane, Wash., Bill Beall Jr. and Gail Ableman — who each use power wheelchairs due to Friedreich’s ataxia (FA) — spend much of their time working out to maintain their independence. MDA’s Quest magazine and a love of exercise brought them together — and their love of each other makes possible their continued independence.

Participants will be randomly assigned to a strength or stretching exercise program, and undergo multiple evaluations

posted on August 9, 2011 - 12:00am
Update June 19, 2013: This study is nearing completion. However, enrollment is still open and additional participants are needed.