posted on March 1, 2006 - 10:12am
On Nov. 4, 1976, we sadly checked our daughter Abby out of the hospital a day before her first birthday. With a confirmed diagnosis of spinal muscular atrophy (SMA) and the prediction that she might not have a second birthday and quite likely wouldn’t have a third, the last thing we wanted to do was to spend what might be her only birthday in the hospital.
posted on May 1, 2004 - 4:24pm
The following is an excerpt from Reflections from a Different Journey, edited by Stanley D. Klein, Ph.D., and John D. Kemp. Copyright © 2004 by Stanley D. Klein and John D. Kemp. Reprinted by permission of The McGraw-Hill Companies Inc. All rights reserved. I wish my parents had known that I would grow up to have a satisfying life — a life enriched by independence, fulfilling work, a loving...