The latest advances in diagnosis, medical management and the status of therapy development for neuromuscular diseases were covered at MDA's 2012 Clinical Conference
The 2012 MDA Clinical Conference, held in Las Vegas March 4 -7, gave more than 500 attendees an opportunity to learn from top experts about the latest advances in diagnosis, medical management and emerging therapies for neuromuscular diseases.
The Desktop Desk helped a California student with DMD finish school despite diminished hand and arm strength
David Davison is a friendly, outgoing young man who loved attending school. But last year, as David’s Duchenne muscular dystrophy progressed, his arm and hand strength decreased to the point where he could no longer participate in many classroom activities.
Then one day, David’s special education class at Placer High School in Auburn, Calif., received a gift from a local service club: a new...
Officials learn from MDA panel about improving access to higher education, employment and independent living for people with disabilities
When Angela Wrigglesworth, who has spinal muscular atrophy and uses a power chair, first started college at Texas A&M, she planned to be a business major.
Getting to the business school, however, involved crossing a set of train tracks, and one day, Wrigglesworth’s chair got struck on the tracks.
Wrigglesworth received help from bystanders to free her 300-pound chair before a train came...
Interactive Web pages offer resources on careers, education, independent living and more for youth and young adults with neuromuscular diseases, and their families
Navigating the transition from childhood to adulthood can be complicated. Young people confront numerous important changes at this time, including going off to college, moving away from home, starting a career, establishing friendships and falling in love.
Young adults with disabilities may find it particularly challenging to find and utilize all available resources to help manage and coordinate...
Looking for help as you prepare to meet with your child’s school about individual education plans (IEPs) or 504 Plans, both of which provide accommodations for students with disabilities? Well, you've come to the right place. The following list of IEP and 504 plan resources will help you get started and moving in the right direction.
If you can't print this list, contact your local MDA office to...
Books can inspire, encourage, educate and — above all — unite people of varying abilities
When I was 3 years old, I was diagnosed with Duchenne muscular dystrophy (DMD), the most common of the nine forms of muscular dystrophy. My parents never hid my diagnosis from me but, besides my parents, the only way I learned more about muscular dystrophy (MD) and its future effects on me was through my observation of other campers at MDA summer camp, beginning at age 9. As a child, I never read...
Resources for college-bound students with disabilities
Here's a list of contact information that college-bound students with disabilities, and those considering college, may find helpful. For more on college for students with disabilities, see “Empowering Students to ‘Contribute to Society’.”