posted on April 9, 2012 - 12:00pm
Spring is in the air, and you know what that means — it’s time to prepare for your child’s IEP or 504 plan meeting. Whether you’re just getting started or you’re an old pro, it’s always a good idea to get your game plan ready ahead of time. To help alleviate the stress that can go along with IEP meetings, here’s a roundup of some useful resources that can strengthen your IEP/504 plan toolkit and...

The latest advances in diagnosis, medical management and the status of therapy development for neuromuscular diseases were covered at MDA's 2012 Clinical Conference

posted on March 9, 2012 - 2:28pm
The 2012 MDA Clinical Conference, held in Las Vegas March 4 -7, gave more than 500 attendees an opportunity to learn from top experts about the latest advances in diagnosis, medical management and emerging therapies for neuromuscular diseases.

The Desktop Desk helped a California student with DMD finish school despite diminished hand and arm strength

posted on October 1, 2011 - 8:15am
QUEST Vol. 18, No. 4
David Davison is a friendly, outgoing young man who loved attending school. But last year, as David’s Duchenne muscular dystrophy progressed, his arm and hand strength decreased to the point where he could no longer participate in many classroom activities. Then one day, David’s special education class at Placer High School in Auburn, Calif., received a gift from a local service club: a new...

Officials learn from MDA panel about improving access to higher education, employment and independent living for people with disabilities

posted on September 28, 2011 - 5:31pm
When Angela Wrigglesworth, who has spinal muscular atrophy and uses a power chair, first started college at Texas A&M, she planned to be a business major.  Getting to the business school, however, involved crossing a set of train tracks, and one day, Wrigglesworth’s chair got struck on the tracks. Wrigglesworth received help from bystanders to free her 300-pound chair before a train came...

Interactive Web pages offer resources on careers, education, independent living and more for youth and young adults with neuromuscular diseases, and their families

posted on May 18, 2011 - 10:04am
Navigating the transition from childhood to adulthood can be complicated. Young people confront numerous important changes at this time, including going off to college, moving away from home, starting a career, establishing friendships and falling in love. Young adults with disabilities may find it particularly challenging to find and utilize all available resources to help manage and coordinate...
posted on March 31, 2011 - 10:35am
QUEST Vol. 18, No. 2
Looking for help as you prepare to meet with your child’s school about individual education plans (IEPs) or 504 Plans, both of which provide accommodations for students with disabilities? Well, you've come to the right place. The following list of IEP and 504 plan resources will help you get started and moving in the right direction. If you can't print this list, contact your local MDA office to...

Books can inspire, encourage, educate and — above all — unite people of varying abilities

posted on April 1, 2010 - 4:09pm
QUEST Vol. 17, No. 2
When I was 3 years old, I was diagnosed with Duchenne muscular dystrophy (DMD), the most common of the nine forms of muscular dystrophy. My parents never hid my diagnosis from me but, besides my parents, the only way I learned more about muscular dystrophy (MD) and its future effects on me was through my observation of other campers at MDA summer camp, beginning at age 9. As a child, I never read...

Resources for college-bound students with disabilities

posted on March 31, 2010 - 1:59pm
QUEST Vol. 17, No. 2
Here's a list of contact information that college-bound students with disabilities, and those considering college, may find helpful. For more on college for students with disabilities, see “Empowering Students to ‘Contribute to Society’.”