This August, MDA reps and lawmakers will address issues facing youth with muscle disease as they grow into adulthood
Would you like meet with your congressman to talk about issues important to families facing neuromuscular disease?
Please join us for the MDA Fly Out.
For the third year in a row, MDA families and advocates are gearing up for the MDA Fly Out — annual meetings with congressional representatives held in their home districts throughout the August congressional recess.
Activist and entrepeneur receives top achievement honor
A retired gas industry executive, disability rights activist, green energy entrepreneur and father of a 3-year-old boy has been named the recipient of MDA’s Robert Ross National Personal Achievement Award (PAA) for 2011.
Thomas Arrington III, 48, from Chesapeake, Va., was chosen for the honor from among scores of recipients of statewide PAA awards, based on his personal success and achievements,...
Tracee Garner has something to say. The best-selling and award-winning author wants to share her love for words with the world, and she’s well on her way to achieving her goal.
Garner, 28, is a romance novelist, public speaker, teacher, student and advocate extraordinaire. And, she has spinal muscular atrophy.
Mama might have taught you to be modest and retiring, but those qualities don't cut it when you're fighting the system.
Successful advocacy demands that you believe you're entitled to have what you want, and that you squawk loudly enough to get it. But squawking is an art. Rude, angry squawking can lead straight to the chopping block.
It takes finesse coupled with persistence — squawking in...
Money — it's a big issue when you're coping with a neuromuscular disease. The search for funds to cover needed equipment, home modifications, drugs, treatments and other expenses, and the fight to get benefits from insurance companies and government agencies can be as stressful as the effects of the disease itself.
In this issue, Quest attempts to provide a map of some of the traps, detours and...