Specialists, support groups and stimulant medications help families cope with the unusual cognitive and personality effects of type 1 myotonic dystrophy
posted on September 1, 2008 - 2:27pm
*Many people interviewed for this article asked not to be identified to protect the privacy of affected family members.
“Everybody knows the word apathy,” says a California woman whose 25-year-old daughter’s type 1 myotonic dystrophy (MMD1, sometimes called DM1) was diagnosed just a few years ago. “People use the word loosely. I don’t think it does justice to the reality of this disease.”
Physical health can be out of our control, but attitude is of our own choosing. Meet four people who took an “I’m going to do this” attitude when confronted by health limitations that ended their livelihoods. By using the strength and power of positive thinking, these four successfully transitioned into new satisfying careers.