cost of illness

MDA has supported a total cost-of-illness study for three common neuromuscular disorders that may affect drug development and social and economic policies

posted on August 14, 2013 - 4:00am
"We now have numbers to point to," said Annie Kennedy, MDA's senior vice president of advocacy. "It's not just a back-of-the-envelope calculation anymore.

MDA is conducting the first U.S. survey to determine the financial cost to families of muscular dystrophy, ALS and SMA

posted on April 13, 2011 - 3:17pm
Most people affected by neuromuscular disease know all too well that their condition is costly. MDA wants to find out just how costly — and then translate those figures into terms that will speak to policy makers.