One woman with spinal muscular atrophy uses the power of invisibility to her advantage

posted on October 8, 2015 - 9:27am
I was born with a superpower, only it took most of my life to realize that I had it. I had suspicions when I was younger, but never fully understood the breadth and depth of this superpower until recently. I have the power to be invisible. I can be in a restaurant and the wait staff doesn’t see me. I can be going down the street where people are aggressively distributing pamphlets, and I...

Tough talks demand special skills

posted on November 1, 2008 - 9:48am
QUEST Vol. 15, No. 6
“Mommy, why don’t my legs work?” “It’s not fair, Harrison gets all the attention. What about us? Don’t we matter?” “You’re my husband. Why can’t we talk any more?” “What exactly do you mean, there’s no cure?”
posted on May 1, 2006 - 2:45pm
QUEST Vol. 13, No. 3
The Memorial Sloan-Kettering Cancer Center in New York recently studied the effects of hearing music on 69 adult cancer patients. Remarkably, those who received music therapy reported a 37 percent drop in mood disturbance and 28 percent less anxiety than the other patients. “Researchers know music can affect brainwaves, brain circulation and stress hormones,” says ABC News’ consumer medical...
posted on May 1, 2004 - 4:37pm
On Sept. 7, 1994, my husband, Curry, and I returned home from our appointment with the neurologist. We were stunned, shocked by the diagnosis of amyotrophic lateral sclerosis (ALS or Lou Gehrig's disease) and the prognosis that I had three years to live. I was 36. The ultimate procrastinator, I had done nothing with my life. No family, no successful career — nothing lasting or memorable.