Congenital Muscular Dystrophy

In this college-admissions essay, Harvard-bound Caroline Zheng shares how MDA summer camp gave her confidence

posted on July 14, 2015 - 3:07pm
"Scientists have been trying to find it for hundreds of years, pouring tons of money into research, and to this day they don't have a theory. The elements found in a human being is all junk that you can buy in any market with a child's allowance. Humans are pretty cheaply made," begins a passage from Hiromu Arakawa's Fullmetal Alchemist series. I learned this fact the hard way in...

Michael Wogan, who had congenital muscular dystrophy and was killed in a Reno air show accident, enjoyed travel, airplanes and adventure

posted on September 21, 2011 - 9:00am
Michael Wogan had been looking forward to the trip to the National Championship Air Races in Reno, Nev. According to his younger brother James, “Michael liked to get out and travel, and he was so excited about getting on a plane.” Michael’s older brother Billy, 26 — who, like Michael, 22, and James, 19, has congenital muscular dystrophy (CMD) — was supposed to attend the show with their dad. When...
posted on March 31, 2011 - 10:19am
QUEST Vol. 18, No. 2
Update (January 25, 2012): This story was updated to reflect the online availability of a CMD Family Guide.

Ohio teenager Austin 'Puck' Puckett, who has congenital MD, writes and performs hip-hop music with a 'can do' message

posted on June 11, 2010 - 1:49pm
Eighteen-year-old Austin Puckett — Puck — is an up-and-coming hip-hop (rap) artist from Waynesville, Ohio, who uses his experiences with congenital muscular dystrophy as inspiration for his musical career. Puckett has released two albums, “Million Dollar Dreams” and “Still Wishing,” on which he both wrote and performed the lyrics. ReFraze Studios in Dayton handled recording of both. The albums...